January 2005 Archives
To play the Lysol "Find the Germs" game click here
Great news via email from Deb, Adam's Mom.
Adam's ANC was up to 280 today. Isn't that great
news? Dr. Guinan thinks he's going to be engrafting
soon. It's only day +12, so we are very pleased. He's
also feeling much better, no fevers in a few days.
Picture of Adam & Andy here.
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RISA 02 |
RISA 03 |
RISA 04 |
Andy found Wally and catcher Shoppach at the Jimmy Fund Clinic today.
Here's Wally:
Here's Kelly Shoppach:
Contribución de Ricardo Mayer
Kendra Bradley
Jen Spencer
Kelli Cole
Jen Spencer
Kelli Cole
Nancy Chisholm
Nurses were not able to go to their respective homes due to the blizzard. We gather that five of the 6W nurses slept in one room of the next door hotel, and others in empty rooms at 7East and the CAT/CR in the hospital.
View from room 606 Stem Cell Transplant Unit - Children's Hospital Boston
Blizzard: A severe weather condition characterized by low temperatures, winds 35 mph or greater, and sufficient falling and/or blowing snow in the air to frequently reduce visibility to 1/4 mile or less for a duration of at least 3 hours. A severe blizzard is characterized by temperatures near or below 10°F, winds exceeding 45 mph, and visibility reduced by snow to near zero.
Jan Spear
Nancy Chisholm
Muchas gracias por las peliculas, nos pasamos un muy buen rato viendolas hoy.
Andres
Thank you very much for the radio control toys.
Andy's having a great time with them in the hallway.
Specialy now that he's off Contact Precautions.
Thank you!
Jan Spear
Nancy Chisholm
Lissa Pocze
Julie Tarbox
Lissa Pocze
Melissa Mancuso
El programa se llama "Un milagro de amor", es un programa grabado que va a salir mañana 20 de Enero de 2005 Radio Centro 1030 AM en la Ciudad de Mexico a las 14:00 horas.
Va a estar con Gerardo Canseco (website) que conduce el programa “Excelencia Personal”.
Conoce lo que dice Abuela Marilu sobre la entrevista aqui.
Escucha Radio Centro 1030 AM via Internet dando click aqui
Denise Braddock
Jilian Davido
PATIENT
Bearing pains or trials calmly or without complaint.
Manifesting forbearance under provocation or strain.
Not hasty or impetuous.
Steadfast despite opposition, difficulty, or adversity.
Able or willing to bear.
PATIENCE:
The capacity, habit, or fact of being patient.
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PACIENTE:
Que tiene paciencia.
PACIENCIA:
Virtud del que sabe sufrir y tolerar los infortunios y adversidades con fortaleza, sin lamentarse.
Calidad del que sabe esperar con calma una cosa que tarda, o sufrir la duración de un trabajo.
Tolerancia o consentimiento en mengua del honor.
Contribución de Alfredo d'Argence Z.
Kelli Cole
Jilian Davido
Jeniffer Cuchinata
Kelli Cole
Maura Padula
Lisa Perry
A story from NBC News uses Dr. Orange's words:
"A person with primary immune deficiency is unable to protect themselves from even common infections," said Dr. Jordan Orange, a pediatric immunologist.
"What we're doing with this treatment is replacing that missing part of her immune system," Orange said.
Dr. Jordan Orange found NEMO, Andy's primary immune deficiency. He's our very good friend and the best doctor we've ever met (and we've met plenty).
Find articles in this blog about Dr. Orange here and his website at CHOP (Children's Hospital Philadelphia) here.
The NBC News story in Philadelphia here.
The NBC News story in Boston here.
More coverage of the story here.
Maura Padula
Lisa Perry
Sarah Gilbert from blobbingbaby.bom writes the following:
Remember all our discussions about parents who have babies in the hopes their stem cells will cure a terrible disease in their older child? Well, once such family is the Trevinos, and their son, Andy, was diagnosed with NEMO deficiency - a rare genetic immune disorder. The Trevinos are from Mexico, but Andy is being treated at Children’s Hospital Boston. His little sister Sofia is providing stem cells that can cure him, but he still has a long road ahead.
Andres Trevino, Andy’s papa, has started a web site that is centered around fundraising for Andy’s treatment, and for the Andy Fund to search for a cure. We are all sobbing over the Andy Blog, with happy photos of the nurse of the day. His dad calls it his “extreme parenthood” blog.
More here.
Maura Padula
Erin Bourke
Kelli Cole
Greg Allen from daddytypes.com blog writes the following:
Talk about extreme parenting. Andres Trevino and his wife are from Mexico, but they have been basically living in Boston for the last few years after their 5-year old son, Andy began treatment at The Children's Hospital for a rare genetic immune disorder. They're preparing for a stem cell transplant, the only treatment currently available with a chance to cure the disease.
The Andy Blog is Andres' way of documenting his family's situation and his son's treatments, of communicating it to people back home, and of raising money for both Andy's treatment and The Andy Fund, a genetics research grant set up in his name. He's been at it for five years.
More here.
Glenn Reynolds from Instapundit.com writes the following:
EXTREME BLOGGING: Andres Trevino is blogging his son's stem-cell transplant.
More here.
I have always been somewhat of a runner since I was a little girl. My first race I ever ran was a 3 mile road race on the 4th of July when I was 9 years old. I don't know why, but I just always liked to run. Now that I am older, I enjoy running because it's not only a great way to keep in shape, but it also helps me relieve stress and clear my head.
A few years ago, I injured my knees playing soccer. After 2 ACL replacement surgeries, my doctor asked me what my "physical" goals were. I told him, I didn't mind if I didn't play soccer again, but I would really love to run the Boston Marathon someday. He laughed at me and said that this probably wouldn't happen, nor should it. That is when I decided I would run the Boston Marathon. So about 5 years later, I ran my first marathon (2002), and have been running them ever since. I have only done the Boston Marathon because you just can't beat that crowd....they are the one's that carry me through the entire race!
I want to run for Children'sHospital for so many reasons. For starters, it is the place that I received my "new knees" that I have been running on for years. But more importantly, I am a nurse there. I work on the Bone Marrow Transplant floor, and see the bravest, strongest kids running their own marathons every day. There are some days that I leave work wishing I could do more, so I thought that running for Children's Hospital and honoring one of those brave and amazing kids (Andy), would be the "little more" that I could do. In years past, I have never run for Children's Hospital, but the kids that I haved cared for, have always run with me... I think of them throughout the entire race.
More at www.kelli4andy.com
Nancy Chisholm
Caitlin Stratton
Jen Spencer
There's no place like 6W!!
Andy is starting to eat again and Nurses Jen, Lissa & Michelle dance to celebrate.
Caitlin Stratton
CA - Heather:
Kelli Cole
Lisa Perry
The Bruno Family's pizza. Thank you very much!
Families from Andy's school 'The Burr School' with help from the PTO (Parent Teacher Organization) bring some food to help us during Andy's isolation period.
More about the Burr School PTO here.
Thank you!
Adam Fitzpatrick
Five days and 22 hours to go for the ANDY'S CMV MUST GO auction at EBay.
Current highest bid $305.00
The objective: Take away Andy's CMV (citomegalovirus) infection!
The EBAY auction running NOW.
If you win you get Andy's CMV plus a tshirt.
Place your bid here.
Melissa Mancuso
Jan Spear
Melissa Mancuso & Jen Spencer dancing.
Buy Andy's CMV (citomegalovirus) infection and take it away!
I have a EBAY auction running NOW.
If you win you get Andy's CMV plus a tshirt.
Place your bid here.
Jan Spear
Kara Temple
Erin Bourke
Lissa Perry
Sofia is not allowed to come to Andy's room at this time. So it's been some time since Andy and Sofia see each other. Today we setup a videoconference and they were both happy, here are some pictures:
The Shah Family's meal. Thank you very much!
Families from Andy's school 'The Burr School' with help from the PTO (Parent Teacher Organization) bring some food to help us during Andy's isolation period.
More about the Burr School PTO here.
And also, thank you for your help cleaning the snow from the car this morning.
Thank you!
The Yoko Yokono Family's meal is delicious. Thank you very much!
Families from Andy's school 'The Burr School' from the PTO (Parent Teacher Organization) bring some food to help us during Andy's isolation period.
More about the Burr School PTO here.
Thank you!
Erin Bourke
Melinda Weiss, Child Life Specialist for the Stem Cell Transplant Unit - 6W
Lissa Pocze
We used one of the examination gloves, filled with water, used the patient food fridge and a few hours later we got a hand ice sculpture.
Now we're trying to make other ice sculptures from spiderman mask, urinal, water bottle, cups.
Melinda Weiss, Child Life Specialist for the Stem Cell Transplant Unit - 6W
Roberta Whalen, Tutor & Sarah Orlov from Newton Public Schools visited Andy today.
Roberta brought books, projects and software for Andy and he did great, much better than a day before when he was not feeling well.
I talked to Sarah & Roberta regarding the hospital's tutor program which may contribute to Andy's total tutoring time during the week. We're trying to find someone here that could be available when Roberta's tutoring is delayed due to medical treatments or when Andy is not feeling well.
The best solution for this issue is near... Andy will feel better soon.
Kelli Cole
Kristin Burns
Kelli Cole
Kara Temple
Adam Fitzpatrick
Kara Temple
Nancy Chisholm
Lisa Perry
Jen Spencer
