Dr. Orange will talk about NEMO at the IDF 2007 National Conference
We made our reservations to the IDF national conference in St. Louis, MO. June 28-30, 2007.
Dr. Jordan Orange will give a talk about NEMO Friday June 29th. from 10:45 am to 11:45 am at the specific diagnosis sessions. These specific diagnosis sessions will provide individuals and families affected by each particular disease a better understanding of the disease, treatment options, research advances, and management of associated complications.
Other talks include:
Bone Marrow and stem cell transplantation
Managing Gastrointestinal Complications of Primary Immune Deficiency Diseases
The Latest Advances in Gene Therapy
General Care of the Primary Immune Deficient Patient
The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis and treatment of patients with primary immune deficiency diseases through research, education and advocacy. Founded in 1980 by parents of children with primary immune deficiency diseases and their physicians, IDF is governed by a Board of Trustees, has an active Medical Advisory Committee of leading clinical immunologists and a grassroots network of volunteers across the country.
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Hello Andy, Andres and Paulina..
My name is Kelly Dunbar and my son Samuel was diagnosed with NEMO last year. I have read your story many times and am so thankful how things have worked out for you and your family. I would love to get in touch with you, even if just by email. We also have a website-www.caringbridge.org/visit/samueldunbar
I spoke with Dr. Orange and he put me in contact with your website. Hope you all are doing well!
Kelly Dunbar