Stem Cell Transplant: September 2007 Archives
Dr. Jordan Orange is the first Immunologist worldwide to give a webinar (definition via Wikipedia) to a primary immune deficiency patient group.
He's also a pioneer regarding primary immune deficiency research (he diagnosed my son Andy).
His webinar included NEMO pathway descriptions, a map of NEMO mutations, ectodermal dysplasia and GI issues with NEMO. The webinar lasted for 1 hour 15 minutes and he answered questions from parents in the US and UK.
Here's a screen capture during the webinar where he's explaining NEMO pathways.
More about Dr. Orange and his lab here.
More about the Nemo Group here.
Conner Smith is at day 21 post transplant, he is 13 years 3 months old and he had NEMO deficiency.
This from his parents blog:
This morning Conner said, "BMTs suck eggs, but it will be worth it... I guess." Needless to say, Conner isn't feeling like his normal perky self. He had a very rough night and even vomited up his NG tube again.
More via www.cure4conner.org
